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Phoenix Rising An ME/CFS Newsletter

Phoenix Rising Archives

Volume V

March '10 -  Proteins on the Brain: Spinal Tapping for ME/CFS

February '10 -  The XMRV CFS Files - the Mystery Continues

January '10 - XMRV Absent in UK CFS Study

December 09: Pt I /  / Pt II / Pt III -  Federal Advisory Committee Meeting and XMRV Transcripts

November 09 - the Phoenix Rising Researcher of the Year for 2008

October 09 - XMRV - the Game Changer?

Volume IV

August/September 09 - IACFS/ME International Conference

June/July 09 - An Amazing ME/CFS Recovery Story

March/ April/ May 09 - The International Conference Edition - Treatment Section: Part I / Part II

Febuary 09  - "Right Living": An Interview with Dr. Ken Friedberg, Part I

January 09 - Cracking the Foundation: The Pacific Fatigue Lab and ME/CFS

December 08 - the CAA/CDC: The Rumble Continues:  Reaction at the CFSAC/ME/CFS Experts Punt on External Review.

October 08 - An Interview with virologist Dr. John Chia Interview

November 08 - the News Edition: the CAA Slams the CDC!, the Whittemore-Peterson Neuro-Immune Institute Comes Out of the Closet/The First Federally Approved Drug for ME/CFS?

Volume III

No. X September 08- Cortisol, Cortisol, Cortisol! - The Cortisol Editiol

No IX August 08 - May Day: the Congressional Briefing, CFSAC Meeting

No. VIII July 08 -  The Symposium on Viruses in ME/CFS: a Two Part Overview

No VII. June 08 - Dr. Ken Friedman Interview II: Research - Roadblocks and Opportunities

No. VI. May 08 -  Fighting Mad: The Tom Hennessey Interview

No. V. April 08 - Dr. Ken Friedman Interview I: the Federal Response to ME/CFS

No IV March 08 - Dr. Klimas and the Immune System

No III Jan 08 - Dumbfounded in Dubbo!

Volume II

No. 1 September 06 The Subsets in CFS; An Immune Subset in CFS? plus Pharmacogenomics V: The Subset Studies / Meg's Story / Personal Story - Breakthrough Denied? Part II

No. II October 06 - Death and CFS / Exercise Problems in CFS or Not?

Special Edition: The Dorothy Wall Interview (Nov 06)

Special Edition:The Marly Silverman Interview (Jan 07)

No. III Nov/Dec 2006 - The Treatment Edition: D-ribose to Improve Energy / LRT- A Missing Factor in CFS Treatment? / Massage the Pain Away? / Antibiotics and Anti-depressants For CFS? and more

Special Edition: The 2007 P.A.N.D.O.R.A / IACFS Patient Conference

  • Part I:  Politics and Advocacy / Dr. Teitlebaum and D-Ribose / Ask the Experts
  • Part II Sleep and CFS / Dr. De Meirleir and the Gut / P.A.N.D.O.R.A. Sand Castle Awards / Dr. Cheney's Keynote Address

Special Edition: The 2007 IACFS 8th Professional Conference

  • Part I: Fatigue Session Introduction / Vascular & Cardiovascular / Exercise Studies
  • Part II: The Brain / Gene & Genetics Studies
  • Part III: The Immune System, the Gut, Pain and Sleep
  • Part IV: The Clinical Trials
  • Part V:Defining CFS, Economic Costs, Behavioral Issues and the Conference Take Away Points.

No. IV Jan/Feb 2007 - The CAA Media Campaign / A Model of HPA Axis Dysfunction in CFS / Validation of the Model / The Intensive Twin Studies Find Brain Abnormalities / Oxidative Stress and Red Blood Cells in CFS.

Special Edition: The Pat Fero Interview (Apr 07)

No. V March/April 2007 A Disease of Many Faces? Fatigue in CFS, FM, Multiple Sclerosis and Post-Cancer.

Special Edition: The Advocacy Issue: Report From Lobby Day, the CFSAC Meeting and  The Neuro-immune Grant for CFS Part IV: The Neuroimmune RFA (June 07)

 No. VI May/June 2007 - "Hitting a Moving Target" - The Prevalence/Definition Edition.

Vol II No. VII July/August 2007 - The Autonomic Nervous System Edition

Special Edition:  The Rik Carlson Interview (Sept. 07)

Special Edition: The Suzanne Vernon Interview (Nov 07)

Vol II No XI: Story Edition (Dec 07)

Special Edition: 2006  Year in Review: Paper of the Year, Top Ten Research Papers.

VOLUME I

No I Sept 2005 - CFS Research Center Formed / The NIH Comes Through (!) - New Funding Granted / A Tragic Death / The Genes Have It - A Promising Gene Expression Study / Downer Paper of the Year / Psychological Basis for CFS Invalidated? / CFS Research Spreads East

No 2 October 2005 - British Government Climbs Out of the Stone Age / Free Radicals Attack CFS Patients / Swedish Epidemiologists Hit a Trifecta / A Month in the Life of an CFS/MCS Patient Part I

No 3 November 2005 - Unique Donor Sample Program / CFS Researcher Publishes 'Novel' / Low Blood Volume in POTS (and CFS?) Resolved? / Is CFS an AIDS-like disease? Another Opportunistic Pathogen in CFS / Report from Portugal / Month in the Life of an CFS/MCS Patient Part II

No. 4 December 2005 - Two CFS Conferences / REDLABS Comes to the U.S / A Biomarker in the Brain? / Exercise Causes Immune Activation / Special Report: the Neuroimmune Grant for CFS, Part I, The 2003 Neuroimmune Conference

No. 5 January 2006 A Goodbye To Jason Breckenridge / Ampligen Trial Opens / Dr. Kerr/Cheney/Natelson Talk / Immune Cells Burned Out in CFS? / No Orthostatic Intolerance in CFS?

 No. 6 February 2006 - CAA Publishes Large Research Overview / The Dubbo Studies Part One - EBV; A Model of Post-infective Fatigue Emerging? / Fatigue and Infection - A Central Agent Identified?/ Report From Down Under - Life With CFS in Australia.

No 7 March 2006 - Evidence of Brain Shutdown in Fatigued CFS Patients / An Overview of Fibromyalgia Part I: - Is FMS a Brain Disease? / The Neuroimmune Grant for CFS, Part III - Reviewing the Reviewers.

No. 8. April 2006 - Reports from the London Conference / An Overview of Fibromyalgia Part II - Is FMS a Muscle Disease? / Treating CFS - An Overview of the Recent Clinical Studies

No. 9 May 2006 - The CDC Pharmacogenomics Studies Part I; Allostatic Stress in CFS / Reduced Brain Blood Flows in CFS / No Hypercoagulation in CFS?

No 10 June 2006 - Dr. Cheney talks / HHV-6 Conference Highlights /The CDC Pharmacogenomics Studies Part II: The Gene Expression Studies I, II, III

No. 11 July 2006 Senate Slams NIH, Praises CDC / The  Immune, Neurological and Endocrine Gene Mutations in CFS / Claire's Story

No. 12 August 2006 - Free Canadian Legal Resource / Phoenix Rising Researcher of the Year! / A Biomarker for CFS Identified? / Estrogen - A Cause of the Female Predominance in CFS? / Personal Story - Breakthrough Emerging Part I

Special Edition: 2005 The Year in Review Trends in CFS Research / Paper of the Year / Top Ten CFS Research Papers.