The Perils of Standing: Resources for Chronic Fatigue Syndrome (ME/CFS)
Patients with Orthostatic Intolerance
Dr. Peter Rowe – broke the story on OI and ME/CFS
in the mid 1990’s. He provides the
most
complete overview of drugs for CFS
patients with OI and excellent overviews of other subjects. It was last updated about five years ago.
National Dysautonomia
Research Foundation (NDRF)- provides many resources for people with
orthostatic intolerance, information, forums,
a handbook,
lists of medical specialists, and
more.
Dysautonomia
Information Network (DINET) - Research overviews,
treatment suggestion, an excellent newsletter, Q & A’s with doctors – DINET is a
great resource for people with orthostatic intolerance.
Orthostatic Intolerance
Drugs
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Ehlers-Danlos National
Foundation - Research, treatment information, newsletter, message
boards
The Perils of Standing - A comprehensive four-part overview of
Orthostatic Intolerance research in Chronic Fatigue Syndrome (ME/CFS)
Vanderbilt Autonomic Dysfunction Center – established in 1978, is
reportedly one of the top testing facilities in the nation.
OI Resource
– an excellent guide to various aspects of OI with an emphasis on finding,
wearing, and learning about G-suits from a chronic fatigue syndrome patient with
orthostatic intolerance. .
Dynakids - an
excellent site for young people with dysautonomia. Contains disease
information, advice on how to deal with school, resources, stories, etc.
Compression Hosiery - online resources of
compression hosiery include:
Others
- Blood Pressure Monitor - can help those with neurally mediated
hypotension (low blood pressure upon standing) monitor their blood pressure,
Dr. Rowe recommends suggests the kind of cuff that goes around the upper
arm not the wrist or finger.